NMA is a nonprofit organization founded by five parents whose children have died or suffered long-term disabilities from meningococcal meningitis. NMA’s mission is to educate families, medical professionals, and others about bacterial meningitis and prevention approaches to the disease. The website features stories from NMA advocates, maintains a listing of state meningococcal disease policies, and provides many educational resources.

CoMO is an international member organization working to reduce the incidence and impact of meningitis worldwide. CoMO brings together patient groups, health professionals and organisations, meningitis survivors and families from more than 25 countries to help prevent meningitis.

Meningitis Angels is a nonprofit organization composed of survivors and families of meningitis victims. They offer information and support to families affected by meningitis.

This website features a meningitis video library and educational resources for parents and school nurses; it is sponsored by the National Association of School Nurses and Sanofi Pasteur.

In the summer of 2009, Senate Bill 819, a.k.a. “The Jamie Schanbaum Act,” requiring meningitis vaccinations of college students, passed thanks to Jamie and her supporters. The J.A.M.I.E Group advocates for increased information about meningitis for students, parents, teachers, and the medical profession to secure stronger, healthier communities.